Resources
Surveys
Real time feedback
Online feedback -Patient opinion - what are people saying?
Guidance for PPGs
National Association of Patient Partnership Groups - several really useful documents, getting started, communications, and growing participation.
The BMA
PP DES guidance
Developing Virtual Patient Participation
Running sessions
http://www.brainstorming.co.uk/tutorials/runningabrainstormsession.html
http://www.webcredible.co.uk/user-friendly-resources/web-usability/focus-groups.shtml
how to set up committees, roles etc
Other general, useful sites and guides
http://www.kingsfund.org.uk/ebcd/is_ecbd_for_you.html
http://www.institute.nhs.uk/quality_and_value/introduction/experience_based_design.html
A series of toolkits from Scotland’s ‘Service User’ website
Toolkit and involvement in health literature review
Ideas on getting people involved
A good introduction to the basics of involvement and participation generally. Also included are pages and pages of links to methods and publications, and a process planner tool; to work out what methods may be most useful for you.
Experience Based Design – and quite a lot of other interesting information
Timeline of the Health Bill
HealthWatch consultation response
HealthWatch resources, and other links
HealthWatch Pathfinders report
Smart guides to engagement
Involve -national advisory group which supports greater public involvement in NHS, public health and social care research.
‘Trust me, I’m a patient ‘-A patient and public involvement role play game, produced by the Department of Health. The aim of the game is for participants to consider how patients and the public are involved in service changes. Perhaps dated now, but some good ideas.
Booklet around running groups from Voluntary Action Sheffield
List of health days and weeks
Confused by TLA’s? (Three letter acronyms!)
Last reviewed: 13/09/2012




